Disability Pride Month
It's #DisabilityPrideMonth and I want to take a moment to talk about what disability means to me.
When I first entered the workforce, I had a PICC line in my arm (permanent IV) and was hooked up to an IV for eight hours each day. I often wore a long sleeve t-shirt to hide the PICC and many people may not have even known I was sick.
At my first "real" job, I chose not to tell my boss about this IV prior to accepting the job. This was partly due to fear and shame, but also, I didn't know why that mattered. I didn't check the box that said "I have a disability", so what was the point of saying anything?
Now, four years later, I proudly identify as someone living with a #disability. It may not be visible, and I may no longer have a PICC line, but I will always live with residual side effects from Lyme disease.
All this to say that disability is diverse. Just because someone may not appear to be disabled at first glance does not mean that an individual may be disabled / chronically ill. 70% of disabilities are invisible, meaning that odds are, you won't know if someone is living with a disability.
This month, my hopes are that we can:
➡️ Be aware of the fact that disability is a spectrum
➡️ Educate ourselves on the blatant discrimination the disability community still faces today
➡️ Support and uplift disabled voices
➡️ Commit to listening, understanding, and always learning
Join us in celebrating Disability Pride Month.
#ChronicallyCapable #WeAreCapable #DisabilityInclusion #DisabilityPride
NDEAM celebrates both the past and present contributions of workers with disabilities in America. Importantly, NDEAM serves as a mechanism through which supportive and inclusive employment practices and policies for all workers, especially those who have a disability(s) can be showcased, advocated for, and encouraged.
Growing up with an invisible disability has taught me that there are some people who are ignorant, unaware they are exhibiting audist behaviors. It’s because the hearing person has never met a deaf person before and will try to walk away because they don’t know how to interact with them. People who don’t feel comfortable have a tendency to get away from something so they don’t have to deal with it. That can be frustrating for deaf people.
Empathy is something that I believe is truly lacking in today’s society. “It’s gotten harder to empathize; that’s why it’s so important we work at it. Luckily, we can.” says Jamil Zaki in this UC Berkley article, 'In a Divided World, We Need to Choose Empathy'. The article discusses the hard truths surrounding empathy, supported by real-life examples and proven facts about how it can help us all.
I will never forget November 19th, 2019. My new rheumatologist broke the news this way: “I bet you have been told your entire life that your weight was the cause of your back pain. I want you to know it wasn’t, although weight loss can certainly help. We see the damage, and you were right - you have Ankylosing Spondylitis.”
As the weather heats up and we feel the urge to travel, I want to share some tips that have helped me keep my anxiety at bay while away from home. Many mental health illnesses flare up when we are away from home because we are naturally out of our comfort zone.
Existing as a disabled woman in the workplace, we face any number of barriers to getting our jobs done but none more painful and avoidable than the ignorance of our peers.
I knew I was an actor before I knew I was Autistic. I started acting at 11 years old, but I wasn’t diagnosed until I was 22.
There are many misconceptions about the lives of those of us who live with CP. I hope to help someone who may be living, loving, or just learning about Cerebral Palsy.
While many of us know the benefits of closed captions, many Zoom users still have not enabled closed captions. While this used to only be offer to 'paid' Zoom accounts, the company announced earlier this year that closed captions would be available to all Zoom users, regardless of plan type.